Stevens-Johnson Syndrome

Snapshot

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  • A 21-year-old gentleman comes to the emergency room with a painful rash all over his body, including some lesions in his mouth. He also describes feeling feverish. On physical exam, his skin has multiple bullae that sloughs off easily with a single rub. The rash covers > 30% of his body. A careful history reveals that he was recently put on lamotrigine for his epilepsy. The lamotrigine is stopped and patient is immediately admitted to the burn unit.

Introduction

  • Stevens Johnson Syndrome (SJS) and Toxic Epidermal Necrolysis (TEN) – two diseases on the same spectrum 
    • SJS: < 10% of body surface area
    • TEN: > 30% of body surface area
    • SJS/TEN overlap: 10-30% of body surface area 
  • Severe, febrile blistering disease of skin and mucous membranes
    • often caused by drugs (>>> infection)
      • e.g., penicillin, sulfonamides, phenytoin, carbamazepine, lamotrigine, NSAIDs
    • can be caused by infection
      • e.g., mycoplasma pneumonia
  • Erythema multiforme (EM) is a distinct disease from SJS/TEN according to the current consensus definition 

Presentation

  • Symptoms
    • very painful skin (vs in EM, where pain/burning is typically very mild)
    • systemic signs
      • fever
      • dehydration
      • hypotension
  • Physical exam
    • initially dusky red macules or patches (not raised) that progress to tense bullae and eventual skin sloughing (vs in EM, where lesions are typically papular)
    • mucous membranes always involved 
      • bullae and erosions in oral, genital, anal mucosa
  • + Nikolsky sign (rubbing of skin easily causes sloughing – splitting of epidermis from dermis)

Evaluation

  • Based on clinical history and symptoms
  • Skin biopsy: mainly to distinguish staphylococcal scalded skin syndrome and TEN
    • full-thickness epidermal necrosis 
  • Labs: normal

Differential Diagnosis

  • Staphylococcal scalded skin syndrome
  • Graft versus host disease
  • Pemphigus vulgaris
  • Erythema multiforme

Treatment

  • Discontinue causative agent
  • Supportive care 
    • wound care
    • fluids, electrolytes, nutrition
  • Treat underlying infection

Prognosis, Prevention, and Complications

  •  High mortality, especially with TEN